The Humane Touch: Treating the Patient Beyond the Disease

“The ethics of human concerns are indivisibly bound with scientific observations”
– Baruch Blumberg

Today an elderly woman came to my OPD with her daughter and granddaughter. She used to work as a domestic help. A few days ago she had undergone some blood tests. One of them showed that she was Hepatitis B positive. Not liver failure. Not even active disease. An asymptomatic inactive carrier. Someone had seen the report. Then the whispers started.

Soon she was told not to come for work anymore. Jobless, penniless, and in abject despair, she had been running from pillar to post, from this clinic to that hospital just to know what this ‘hepatitis’ was. Something so sinister that had made her already difficult life totally unbearable! As she sat before me, she kept looking at the papers in her hand. Then she asked, almost in a whisper, “Sir, what has happened to me?”

I explained as simply as I could. She listened carefully and nodded. Then she asked another question. This time it was not about Hepatitis B. “Why don’t people touch me?”

I did not know what to say immediately. She went on. “They move away when I sit near them. They tell me not to touch things. Even in hospitals, some people keep a distance after seeing my report.” There was no anger in her voice.

Only bewilderment.

As if she was trying to understand when exactly she had become someone to be feared. Her granddaughter stood beside her, holding the edge of her saree.

Three generations had come to understand a blood test. Instead, they had encountered stigma.

My teacher, Professor Shivaram Prasad Singh, the person who had started the observance of July 28 as World Hepatitis Day for the first time in the world, used to tell us about the pressing need of awareness regarding Hepatitis B.

Long before awareness campaigns became fashionable, he was talking about hepatitis, educating people, fighting myths. He often spoke about his interactions with the person who had discovered the virus itself, Nobel Laureate Professor Baruch Blumberg and about the need to remove the fear surrounding the disease.

Without thinking much, I reached out and held her hand. Then I offered her water from my bottle. She looked surprised. After some hesitation, she drank.

I took the bottle back and drank from it myself.

Not to prove anything. Not to make a point.

It just felt like the natural thing to do. Tears welled up in her eyes.

As she was leaving, her face looked different.

Relieved, perhaps. Not because her Hepatitis B had disappeared. But because for a few minutes she had been treated not as a virus, not as a report, not as a danger. Just as a fellow human being.

After she left, I kept thinking that Hepatitis B is not the only thing people carry. Many carry loneliness. Many carry humiliation. Many carry the burden of being avoided.

The virus is often easier to deal with than the stigma. In medicine, treatment needs to begin with something as simple as a touch. The humane touch.

Red Beard

Bearded man in worn traditional kimono sitting in Japanese interior with wooden elements

I first heard about Red Beard from Dwarika jethu. The story of how I came to know the film is, in itself, partly interesting and partly poignant. Comrade Dwarikanath Rath had always been ‘Dwarika jethu’ to me. As a child, I knew him simply as Sani bhai’s father and the husband of Comrade Binapani Das – our beloved Bina mausi. He had left Odisha and the familiar lanes of Cuttack long ago to work in Gujarat, making Ahmedabad his base for the Party’s activities. Though, for people like him, ‘settling down’ is perhaps the wrong expression. Revolutionaries never really settle anywhere; they merely continue their journey from one battlefield to another.

My acquaintance with him deepened during the final days of Bina mausi’s illness. She was admitted to the ICU, directly opposite my Gastroenterology OPD. Between patients, Dwarika jethu would quietly sit in my chamber, watching me work. He spoke little, observed much. Then one day, almost casually, he said, ‘I see traces of Red Beard in you.’ That was my initiation.

Soon afterwards, Bina mausi passed away. Those were turbulent days. I still remember her funeral and the memorial meeting at Shahid Bhavan. People came in large numbers – cutting across political affiliations, professions, generations, and social identities – to pay homage to a woman whose life had touched so many. But that, perhaps, is a story for another day. And then came Red Beard. Akira Kurosawa had fascinated me long before.

I had watched Rashomon and Seven Samurai, admiring the master storyteller who understood human frailty like few others. But Red Beard was different. It did not merely impress me. It unsettled me. It took my breath away. It left me in the midst of an inner conflict – a conflict that continues to this day. The conflict between what I do and what I ought to do as a doctor. Between what I prescribe and what I am duty-bound to prescribe. Between what I tell my patients and what I ought to tell them. Between the assurances I offer others and the questions my own conscience asks me when the day is over. I blame, without hesitation, this cruel capitalist system for hollowing out the very soul of medicine. A profession built on compassion is increasingly measured in revenue. Suffering has become a market. Illness, a commodity. Hospitals compete where they should care. Yet, amidst this darkness, Kurosawa gave us Red Beard.

Behind the gruff exterior of the old physician flows an inexhaustible river of compassion. His anger is never born of arrogance; it is born of love – love for people who have been abandoned by society. In him, I found the living embodiment of Virchow’s timeless words: ‘Medicine is a social science, and politics is nothing but medicine on a large scale.’ And also the physician as the natural attorney of the poor. Through Yasumoto’s transformation, Kurosawa quietly takes us through society itself – its poverty and privilege, ignorance and wisdom, dignity and degradation, ethics and the frightening erosion of ethics. It is not merely a film about medicine. It is a meditation on what it means to be human. More importantly it is a call for the need to cultivate a new medical ethics, a higher ethics in medicine born out of a higher social ethics.

Long before I encountered Red Beard, I had travelled across the length and breadth of Latin America with two unforgettable companions – Ernesto and Alberto. Along that journey, I too dreamt of becoming a doctor who would serve ordinary people before serving himself. Years have passed. Today, I am a gastroenterologist. But every now and then I ask myself questions.

Have I truly been able to comfort the parents of the young girl with leukaemia who have sold everything they owned and still cannot afford the care she deserves? Have I done enough for the labourer who quietly postpones his much needed endoscopy because missing a day’s wage means his children will sleep hungry? Have I merely treated diseases, or have I stood beside those who suffer? I know the answers are incomplete. I know there is still a long road ahead.

Perhaps that is why Red Beard continues to walk beside me asking me those uncomfortable questions.  It reminds me that medicine is not merely a science to be mastered or a profession to be practised. It is a moral responsibility. A lifelong struggle against disease, certainly – but also against injustice, inequality, indifference, and the silent violence that the system inflicts upon its most vulnerable.

I remembered, one fine day, not long ago, at Prabhabati Bhawan in Cuttack, my friend Sunil had spoken to me about Red Beard. I had listened that day, but perhaps I did not pay enough attention. Thank you, dear Sunil. Thank you, Dwarika jethu. And thank you, Red Beard, for refusing to let my conscience fall asleep.